Well, from what I’ve seen, several Birchbloggers have been having a problem getting their box this month! I got mine rather early, luckily–and I love my products.
Today baby Ant had his liver biopsy. The cat scan that they used to insert the needle didn’t show any irregularities, but we won’t have the results of the biopsy until probably Wednesday. Unfortunately, they were unable to draw labs during the procedure because they had difficulty getting the IV in. The whole point of drawing labs during the procedure was that he would be asleep and the IV would make it easier to get blood out. Now we have to wait until Monday to get most of blood work done and the genetics tests won’t be drawn until the 19th of November. This is REALLY frustrating and its looking more and more like we need to get to Boston and have Ant treated by the most experienced liver doctors.
Right now Ant is in the PICU for recovery. Because of his history with lung problems, he was put on a high-flow oxygen tube when he first arrived in the PICU. They just switched him to a regular oxygen tube and hopefully soon he will be completely off the oxygen. He has had nothing but an IV with dextrose since 8 AM, so I really want to be able to feed him soon. Most likely he will stay in the PICU over night so they can monitor him, but we can go home some time tomorrow. On Monday, Ant will have an appointment with his pediatrician. In the mean time his dad and I will be discussing if we will take him to Boston Children’s Hospital, and we will be in contact with them to see what they can do for Ant that isn’t being done here at Tulane.
Please, every one, continue sending love our way. It is greatly appreciated.
If you would like to donate to help Baby Ant get the care he needs, we started a GoFundMe account for him. You can find it here at GoFundMe.com. Thank you all!
Today is day 3 of Ant’s re-admit. Yesterday we had a plan for labs and a liver biopsy to be done today. That plan got all fucked up and I’m trying really hard to be patient and not be a complete bitch to the hospital staff. After putting Ant through the stress of fasting for eight hours, the procedure got pushed back to tomorrow morning. His doctor reassured me that he was their priority for the morning, but its still very frustrating. Continue reading
On Monday (October 27th) my sweet Ant had an appointment with his GI specialist. The appointment was to go over the labs that were drawn the previous week, to re-check his bilirubin levels, to get a few genetic labs, and for a weight check. Ant had gained six ounces within the week, but Dr. Fortgang was not impressed with this. She said he should have gained more weight by now and even though he wasn’t losing weight it was still alarming. His bilirubin level was 1.9 (the previous week it was 1.6 and the week before, 1.3) which showed her that something was definitely wrong with his liver. Dr. Fortgang said that she would have his bili level checked again and if it wasn’t better she wanted to re-admit him. So, his blood was drawn and we went home to wait. That evening we received a phone call from his nurse who told us that his bilirubin was a 1.8. We could either bring him into the hospital and admit him in order to get everything done as quickly as possible, or we could schedule appointments over the next couple weeks. We opted to admit him. Continue reading
You may not have heard, but Cassie and Anthony’s 5 week old son, Baby Ant, is back in the hospital. We’d love to say he was okay, but that isn’t the case. Baby Ant has been suffering since he was born with a condition that affects his liver. Currently, the doctors in New Orleans, where he was born, don’t know what is wrong. Continue reading
In February of 2014, three friends came together to make the lives of others a little brighter. Shaun, Kevin and Jim (ages 19-24) decided to start a pay-it-forward type, Boston-based non-profit group. They named it Random Acts Revolution, made a Facebook page, and began recording Youtube videos in order to inspire others to join their efforts. According to the Random Acts Revolution Facebook page, their mission is to carry out “random acts of kindness to create ripples of goodwill and generosity.” Continue reading